At its origin, the HIV movement was based in the spirit of grassroots organizing and activism. The movement had an expressed commitment to LGBTQ people, people of color, substance users, sex workers and, most importantly, folks from within these communities living with HIV and dying from AIDS. Throughout the 80s and 90s, activists and organizers affected by HIV protested and demanded treatment and protections for people living with HIV at a time when discrimination towards poz people was legal and acceptable to the general public. This history influenced my entree into HIV advocacy and direct service and continues to fuel my commitment to this work.
Today, the mainstream HIV movement appears somewhat ambivalent towards movements for social justice and liberation. HIV and AIDS is big money and billions of dollars are spent worldwide to address the pandemic. In the President’s budget for FY 2016, he has requested $25.3 billion for domestic funding on HIV/AIDS.
Image from recent article from Kaiser Family Foundation.
My attempts at finding data on the amount of profit pharmaceutical companies stand to gain from HIV care and treatment were unsuccessful. But the recent scandal involving Turing Pharmaceuticals’ 5,000% increase of Daraprim, a medication used by people living with HIV/AIDS, is a glimpse into the motivation of some of these companies which Martin Shkreli (Turing’s CEO) clearly stated is profit. As capitalism drives this movement, there becomes a financial incentive for people to continue to become infected with HIV. I know this may sound harsh or like a conspiracy theory to some of you, but whether or not this is conscious or intentional, it is true. I have been disappointed at the lackluster attempts to speak to the root causes that increase black folks risk for HIV. The inability of these movements (HIV, racial justice, gender justice, etc.) to work at the intersections of these overlapping issues are having the greatest impact on queer, trans, and poor black folks, as well as black people living with HIV.
In my work outside of the field of HIV, I have had opportunities to work with leaders in LGBT Justice, Gender Justice, Racial Justice, and Reproductive Justice. This past year, I have attended multiple gatherings focused on boys and men of color, and have not heard HIV mentioned even once. LGBT, Gender, and Reproductive Justice organizations tend to have an analysis around HIV that is more sophisticated and often focused on criminalization and violence. Mainstream organizations from these movements tend to lack the same level of sophistication around anti-blackness in their work. None of us are perfect (myself included) and neither are our movements. We are constantly growing, developing, and learning from our mistakes and some of us have an expressed commitment to transform even when it hurts. However, given the level of urgency for black people affected by HIV and AIDS, we need to do much more to shift the differential impact HIV has on our community.
The fear of black sexuality surely contributes to the radio silence around HIV in our social justice movements and in black communities in this country. As a people, we have been hypersexualized as a way to justify repression and violence by those who uphold white supremacy. The stereotypes of “jezebel” and “mandingo” have led many black folks to project and encourage sexual piety and chastity to combat these messages as a way to re-assert our humanity. HIV – which has long been associated with sexual deviance and addiction – is an ever present reminder that indeed, some of us are actually having sex, outside of marriage, with people of all genders and with more than one partner (heaven forbid). Some of us (in fact many of us) are also having sex without using condoms, prophylactics or contraception. And what does this say about us as a people in the eyes of white supremacy? This is the often subconscious question that is at the root of our sexual repression and denial. This is why I can attend a conference for black sexologists and clinicians in 2015 and there is little to no conversation around HIV/AIDS, but there is a workshop on young black women becoming a born again virgins.
The need or desire to appear “respectable” to dominant society will never lead to our liberation. You or someone you care about can do “all the right things” and still contract HIV because it does not come from black people’s amoral behavior, but from the innumerable consequences of anti-black racism and poverty as well as the complicity of our silences. We need our movements for racial and gender justice to draw the connections between how issues such as police brutality, gender based violence, and lack of housing, jobs, education and healthcare all create the context for black people to continue to have the highest rates of HIV in the WORLD! We need to address the rampant homophobia and transphobia that exists behind our collective shame around HIV. We need the field of HIV to support the leadership and work of radical black HIV positive folks who are combatting anti-blackness in HIV organizations and services across the country.
Where do we go from here? The last part of this series will lift up practices, policies and frameworks to address the intersections of anti-black racism and HIV/AIDS in our movements, communities and organizations.